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Today, the Capitol will be open for business as usual (yes, on Memorial Day).  Tomorrow, at 10 am, the House Revenue and Finance Committee will hold a hearing.  HB 395, the 5% income tax bill, will be on the agenda.  We need people both in Springfield and around the state to do everything they can.  Here are some opportunities for which we need your support:

·      At 5 pm today in the Rotunda, the disability rights action group ADAPT is convening a press conference to share the stories of people with disabilities and workers who will be directly impacted by cuts and delays to home and community based services.  We need people to attend the press conference to show support.  If you are interested in being involved in the press conference or getting the advisory, please contact Gary Arnold of ADAPT at 773-425-2536 or

·      At 8:30 pm on Monday on the steps of the east side of the Capitol, SEIU will hold a candlelight vigil for the 5% income tax.  Again, speakers will include people directly affected by not extending the 5%.  If you are interested into being involved, please contact Scott Vogel at 773-329-5589.

·      At 10 am tomorrow, we will need as many supporters on hand at the Capitol to hear the result of the committee vote on HB 395.

·      From now until 10 am tomorrow, please ask your members and colleagues to call and email the offices of the following House members on the committee: John E. Bradley, Michael J. Zalewski, David Harris, Barbara Flynn Currie, Marcus C. Evans, Jr., Frank J. Mautino, David McSweeney, Joe Sosnowski, Ed Sullivan, Jr., Arthur Turner.  If you go to this link, you can click on their names and find their contact info.  It’s ok to leave a voicemail, but what is most important is getting lots of people to contact their office.

This is a very important moment in our struggle to make sure home and community based services, and the whole social safety net, is protected for people who have no other option. That is the definition of the safety net: it is there for you when all your options run out.  Let’s go Illinois!


Read Southtown Start Column by Phil  Kadner

Read Old Single Mom’s Blog: Governor Quinn, top 10 reasons to pay 
people more to care for people with developmental disabilities.

Click here to thank Governor Quinn for including $1
for DSPs in the FY2015 budget!

Read and Distribute – Campaign-Support Bills Chart Flyer – PDF

Care Support Bills Chart-1404-1


Learn about The Care Campaign in this radio interview with
Trinity Services CEO, Art Dykstra. Courtesy  WMAY Radio

Read the Care Campaign Editorial in the State Journal Register

In the News WAND TV ~ WAND TV2 ~ WRSP TV ~ Press Conference Photos

Governor Quinn got the message as we delivered and mailed
over 18,000 Care Campaign Cards to his office!


















Welcome to The Care Campaign, a coalition of service providers, direct support workers and their unions, associations and individuals formed in January 2013 to raise wages of direct care workers in Illinois.

We hope you’ll join us to help win a living wage for the dedicated people who support those with developmental disabilities. This is important quality of life work performed by women and men who work hard caring for some of the most vulnerable of our fellow citizens.


How you can help:

Why The Care Campaign?
The Care Campaign is a historic coming together of providers, associations, workers and their unions, parents, administrators, caregivers, people with disabilities, and other Illinois citizens. Never before have so many concerned groups and individuals come together around this important issue. We are concerned and we are committed to making a difference for the thousands of direct service professionals in Illinois who tirelessly work to care for our fellow citizens with developmental and other disabilities.

FB-LittleCityIn Illinois there are some 24,000 individuals with developmental disabilities supported in community settings. The problem is that many of the direct support employees who provide that support don’t earn enough to even support their own families. We don’t believe that it is right to pay so little for people who give so much.

Direct support workers in Illinois earn wages below the poverty level.
A recent IARF (Illinois Association of Rehabilitation Facilities) salary survey pegged the average direct support wage in Illinois at $9.35 per hour. That’s 21% below the U.S. Department of Health and Human Services poverty threshold of $11.32 for a family of four. This largely female workforce is often forced to work many overtime hours or even hold down a second job just to make ends meet. Many of these workers and their families have to fall back on public benefits such as Medicaid and food stamps, creating additional expenditures for state government. See the Arc of Illinois Position Paper on (DSPs) Direct Support Professionals

No Cost of Doing Business Increase for community providers since 2007.
Low wages are a consequence of the historically low reimbursement rates for community services. According to the State of the States in Developmental Disabilities report, Illinois ranks 41st of 50 in fiscal effort for these services. The General Assembly has not awarded a Cost of Doing Business Increase to community developmental disability agencies since 2007. Over the last 10 fiscal years, increases in state funding to these agencies have averaged less than 1% per year, for a total of 9.5%. By contrast, the CPI (Consumer Price Index) increased 23% over the same period. Community agencies were forced to cover increases in health insurance, fuel, and other costs from the small rate increases, while wages fell even further behind.

Low pay drives high staff turnover.
The lack of adequate wages for employees who perform the challenging work of supporting individuals with disabilities results in high employee turnover, which in turn, negatively impacts the quality of services provided. In 2008, the ARC of the United States documented annual turnover rates among direct support staff of 35% to 70%. According to a 2007 study, the national turnover rate averages 50% (Hewitt and Larson, 2007). Higher wages are proven to reduce staff turnover, improving stability and quality of services while reducing employer training costs.

The Care Campaign solution.
The Care Campaign proposes increases in reimbursement rates linked directly to increases in direct support staff wages. The goal is to increase those wages to $13 at minimum. To achieve this goal, The Care Campaign supports Senate Bill 2604, sponsored by Senators Heather Steans and Mattie Hunter, Daniel Biss, Julie Morrison and House Bill 3698, sponsored by Representatives Robyn GabelLawrence M. Walsh, Jr., Emanuel Chris Welch, and Laura Fine.

This goal is a modest increase for an individual worker but significant for retaining a quality workforce to serve those with disabilities, helping to reduce turnover and providing a more consistent and supportive environment for those we serve. It will reduce reliance on public benefits such as food stamps and Medicaid while enhancing dignity and self-worth for the thousands who annually go over and above every day of the year to provide exceptional personal services to make life better for people with developmental disabilities.

You can help by signing the petition and spreading the word by liking us on Facebook and following us on Twitter. Stand with The Care Campaign to show that the citizens of Illinois care about those with disabilities and want a living wage for those who daily work to make life better for them.